Wednesday, February 23, 2005

Once you tell someone, you can't take it back

Regarding a question from Carrie about why I don't tell people I have MS ~

I've personally seen how people are judged when they have any kind of chronic illness. Especially the "invisible" ones. People assume that you can't do something, automatically, without asking. I want to maintain as much independence as possible. I don't tell people who don't KNOW me. I have told a little over a handful of people at work. Since I already had relationships with these people, they took the time to listen and try to understand. I know that I can go to them if I am having a hard time with something, and they won't judge. And they never assume anything. They don't worry about not asking me to do something "just because I have MS".

I have absolutely no trouble speaking up when I can't do something, or I need help. I don't think other people should need an excuse for either of these things. Even my instructors at the gym don't know that I have MS. I don't want any kind of special treatment.

I think it's great when people can be open to others, and that they have the right kind of support when they choose to "go public". Maybe if I worked at a smaller company? I don't know. I just know that this is neither the time nor the place.
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